Your Home for Rare Disease Fundraising
Partner with Rare Impact Agency to fuel your rare disease fundraising, deepen engagement with your community, and drive scientific discovery.
Rare disease research is driven by relentless hope and fierce determination. We are here to amplify your rare disease fundraising.
Behind every scientific discovery is a family getting closer to answers. Behind every new treatment is a community pushing science forward. And behind every dollar raised is a powerful story that drives breakthroughs and fuels cures.
Welcome to Rare Impact Agency. We’re so glad you’re here.
Rare disease fundraising built for your community
Rare Impact Agency is a boutique agency dedicated to rare disease fundraising. We take the burden of fundraising off your shoulders, so you can stay focused on what matters most: accelerating cures and supporting families.
I’m Shannon Bowen, Founder and CEO of Rare Impact Agency. It’s my honor to bring gold-star caliber fundraising talent to the rare disease community.
Together, our senior-level team brings more than 40 years of fundraising and communications experience to fuel your movement.
We know how deeply you care about your families, your researchers, and the future you’re building. Our expert team brings that same heart to every strategy, story, and campaign we create.
Fundraising done for you.
We want you to be able to focus on your powerful work to drive science forward and support diagnosed families, so we handle all of your fundraising and communications for you.
That’s why we offer truly done-for-you rare disease fundraising and communications:
- Strategy and Planning
- Donor Appeals and Campaigns
- Graphic Design for Print and Digital
- Social Media Content and Scheduling
- Printing and Mailing Coordination
- Event Planning and Support
- Corporate Sponsorship Solicitation
- Special Projects
Through monthly retainers, project-based work, end-of-year and Giving Tuesday campaigns, and event support, we bring senior-level strategy, authentic storytelling, and trusted partnership to every aspect of your fundraising. Our services make your work easier, your message clearer, and your impact stronger—helping you raise the resources that move research, care, and hope forward.
From the big picture to the smallest detail, we handle it all. You approve the finals. We take care of the rest.
Where science meets the heart
We are driven by a fierce belief in the power of scientific research and a deep love for the rare disease community.
Our work sits at the intersection of:
- Science – sharing the thrilling momentum of genetic research
- Families – centering the lived experience of diagnosed families
- Donors – inspiring confidence, trust, and generosity
The result is fundraising that resonates deeply, fuels discovery, and grows revenue in a way that feels aligned and sustainable.
Senior-level expertise at an accessible price
Every dollar raised for rare disease research is precious. We don’t take that lightly.
Our clients work with seasoned fundraising professionals at an accessible price point. We maximize impact on every project, whether we’re building a long-term strategy or executing an end-of-year giving campaign.
How foundations can partner with Rare Impact
We offer flexible ways to engage, depending on your needs and capacity:
- Monthly retainers where we run your fundraising operations alongside your team
- Project-based support for focused needs like donor database creation or corporate sponsorship campaigns
- Event support with an experienced team on-site for capturing compelling photo and video at your in-person events
- End-of-Year and Giving Tuesday campaigns that bring your community together during the biggest giving season of the year
What you can expect when you work with us
Our clients tell us that partnering with Rare Impact feels like they finally have the expert team they’ve always needed.
When you work with us, you can expect:
- Clear, confident strategy that raises funds and inspires trust
- Professional, beautifully designed donor communications
- A steady rhythm of high-impact fundraising actions handled for you
- A partner who understands both the science and the heart of your community
- More engaged donors and more dollars fueling treatments and cures
Most of all, our clients tell us they finally exhale.
They feel momentum. They feel excitement.
Hope is a strategy.
We imbue our materials with hope, joy, momentum, and excitement for a brighter future.
We’re here to help you inspire your community, tell your story with confidence, and raise the resources that move rare disease research forward.
If you’re ready for a fundraising partner who truly understands rare disease fundraising, we’d love to meet you.
Schedule your free Discovery Call today.
Let’s build something powerful together.
with gratitude,
Shannon Bowen
Founder & CEO, Rare Impact Agency
Founder + CEO of Rare Impact Agency, provides expert fundraising and communications consulting to nonprofits leveraging her 20+ years of experience. She brings in-depth knowledge and passion for both genetic research and rare disease advocacy to her work.
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