New Webinar: The Power of a Family Fundraiser

When a family receives a rare disease diagnosis, their community often asks the same question:

“How can we help?”

A family fundraiser gives people a meaningful answer.

It might look like a pickleball tournament on a sunny afternoon. A birthday fundraiser instead of gifts. A trivia night filled with laughter, generosity, and shared purpose. These moments are joyful, creative, and full of connection. But they also carry something deeper.

Family fundraisers give people a meaningful way to show up for a family they love while helping move research, treatments, and cures forward.

What begins as one small event often grows into something much bigger. New donors. Stronger community connections. Greater awareness. Lasting momentum fueled by generosity, energy, and hope.

That’s why the team at Rare Impact Agency is hosting a free webinar on June 12th to show rare disease foundations how to launch and run a successful family fundraiser program that makes it easy and joyful for families to participate.

Free Webinar: Family Fundraiser Playbook

How to Mobilize Your Community and Raise Thousands for Your Rare Disease Foundation

Date: June 12, 2026
Time: 9 AM PT / Noon ET
Format: Free Zoom Webinar, registration is required
Length: 60 minutes

What Is a Family Fundraiser?

A family fundraiser is a community-driven event organized by a family, friend group, school, workplace, or local supporter to raise money and awareness for a cause they care deeply about.

For rare disease organizations, these events are especially impactful because they create a personal connection between your mission and the people closest to it. Families already have passionate networks around them: friends, extended family, neighbors, coworkers, schools, faith communities, and local businesses. When equipped with the right tools and support, these communities can become powerful fundraising champions.

Through our work with our Rare Impact clients, oftentimes their largest donor is from an extended network of a family. These events are the first step towards reaching that transformational donor.

Why Family Fundraisers Work So Well for Rare Disease Foundations

Rare disease communities are fueled by personal connection. Friends, neighbors, and loved ones are often eager to help. Family fundraisers invite them into the mission in a way that feels joyful, hopeful, and tangible.

These campaigns help foundations:

• Reach new donor audiences
• Build awareness in new communities
• Strengthen long-term donor relationships
• Create recurring fundraising traditions
• Deepen engagement between families and the foundation
• Generate powerful storytelling opportunities
• Raise critical unrestricted funds for research

And the best part is that these events do not need to be overly complicated to succeed. Some of the most impactful family fundraisers are simple, community-centered gatherings like:

• Pickleball or golf tournaments
• 5Ks or community walks
• Birthday fundraisers
• Trivia nights
• Video game tournaments

The goal is not perfection. The goal is connection.

What You’ll Learn in This Free Webinar

In this free 60-minute webinar, the Rare Impact Agency team will show you how to create a family fundraiser program that feels organized, inspiring, and easy for families to participate in.

You’ll learn:

• How to launch a family fundraiser program from scratch
• What tools and templates families actually need
• How to create fundraiser toolkits that save staff time
• How to guide supporters through planning successful events
• Ways to help families confidently ask for donations
• How to turn one-time participants into long-term advocates
• How to build systems that make grassroots fundraising sustainable

We’ll also share practical examples from our clients and strategies specifically designed for rare disease foundations.

Why Rare Disease Foundations Need Community-Led Fundraising

Many rare disease organizations operate with lean teams and limited staff capacity. Family fundraisers help expand fundraising reach without placing the full burden on internal staff.

At Rare Impact Agency, we specialize in helping rare disease foundations create fundraising and communications systems that are both strategic and deeply human.

Our work includes monthly full-service retainers and the following project-based support:

• Peer-to-Peer fundraising campaigns
• Corporate sponsorship packages
• End-of-year and Giving Tuesday campaigns (coming soon!)
• 6-Month Fundraising Accelerator program

We’ve helped foundations build fundraising systems that mobilize communities, strengthen donor relationships, and accelerate support for research and treatments.

Whether you already run family fundraisers and want to make it easier for you and your families or are starting from scratch, this session will provide practical ideas you can immediately implement.

Reserve Your Spot

Invite your diagnosed families to take action, increase awareness, spread hope, and raise funds.

Join us on June 12th to learn how to mobilize your community and build a family fundraiser program that inspires lasting impact.

Register now to save your free spot for the webinar.

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