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We partner with rare disease foundations at all stages. Whether you’re just getting started with a team of volunteers or have a full team, we step in as your fundraising and communications experts to help you grow revenue with confidence. We also support scientific institutes and disease-focused organizations advancing research, improving care, and supporting families—often with small teams and ambitious goals.

We combine senior-level fundraising expertise with authentic storytelling and deep understanding of the rare disease community. Our work is collaborative, strategic, and grounded in genuine commitment to your mission and families.

Your work is led by Shannon, a fundraiser with more than 20 years of experience, including service as a former C-suite nonprofit executive at a scientific institute focused on rare disease research. She is supported by a specialized team with expertise in fundraising, communications, design, events, data systems, and storytelling.

Fundraising is at the center of our work, but communications and storytelling are fully integrated. We clarify messaging, translate complex science, share family stories, engage donors and sponsors, and build momentum across campaigns and channels.

We work best with foundations that value partnership and want to grow their fundraising capacity—regardless of current budget size. Our services support organizations at every stage, from volunteer-led groups to established teams, with engagements tailored to your needs.