Services

Expert fundraising support at an accessible price

We offer a variety of services and custom packages to amplify your mission.

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Through monthly retainers, project-based work, end-of-year campaigns, and event support, we bring senior-level strategy, authentic storytelling, and trusted partnership to every aspect of your fundraising. Our services make your work easier, your message clearer, and your impact stronger—helping you raise the resources that move research, care, and hope forward.

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Monthly
Retainer

Ongoing expert fundraising and communications support that strengthens strategy, sharpens messaging, provides trusted counsel, and delivers high-impact donor communications.

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Project-Based Engagements

Targeted, high-impact initiatives such as corporate sponsorship campaigns, donor database design, fundraising strategy development, peer-to-peer campaigns, awareness-day video campaigns, and more.

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End-of-Year + Giving Tuesday

A comprehensive, custom print and digital campaign designed to inspire generosity during the biggest giving season of the year. Our team handles all copy + design to make your campaigns shine.

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Event Planning + Support

Expert event support that elevates your family conference, including VIP donor experiences, sponsorship strategy, and on-site photo and video to capture compelling storytelling content.

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Client Testimonials

Rare Impact Agency consistently delivers thoughtful, mission-driven, and effective work fully aligned with the communities it serves. Shannon’s strategic insight and compassion were pivotal to our campaigns. Rare Impact is a perfect solution for small rare disease foundations.

Tresa Warner
Executive Director, National Urea Cycle Disorders Foundation

Working with Shannon and the team was a truly collaborative and thoughtful experience. What I appreciated most was that Shannon didn't just jump into the task; she took her time to deeply understand the complexities of the disease and the lived experiences of those affected by it. Shannon attended two family story nights to hear directly from our patient families to be able to craft authentic messaging for our year-end campaign. That level of empathy and strategic insight made a significant difference.

Sarah Cortell Vandersypen
Executive Director, United MSD Foundation

Our Valued Clients

It is a joy and an honor to serve these incredible rare disease foundations.

FAQs

We partner with rare disease foundations at all stages. Whether you’re just getting started with a team of volunteers or have a full team, we step in as your fundraising and communications experts to help you grow revenue with confidence. We also support scientific institutes and disease-focused organizations advancing research, improving care, and supporting families—often with small teams and ambitious goals.

We combine senior-level fundraising expertise with authentic storytelling and deep understanding of the rare disease community. Our work is collaborative, strategic, and grounded in genuine commitment to your mission and families.

Your work is led by Shannon, a fundraiser with more than 20 years of experience, including service as a former C-suite nonprofit executive at a scientific institute focused on rare disease research. She is supported by a specialized team with expertise in fundraising, communications, design, events, data systems, and storytelling.

Fundraising is at the center of our work, but communications and storytelling are fully integrated. We clarify messaging, translate complex science, share family stories, engage donors and sponsors, and build momentum across campaigns and channels.

We work best with foundations that value partnership and want to grow their fundraising capacity—regardless of current budget size. Our services support organizations at every stage, from volunteer-led groups to established teams, with engagements tailored to your needs.

Ready to Imagine What’s Possible?

Let’s build the future your community is working toward. Schedule a free discovery call and we’ll design the fundraising and communications support that fuels progress today and hope for tomorrow.